“It was May of last year. My oldest had earned perfect attendance and we were so proud and excited. My husband and I work full time and we have 3 kids, so the fact that everyone had been healthy all school year was incredible. Life was good. And then, it invaded our life.”
‘I have a dirty little secret. We all had it. It started out innocently enough. It was the worst 3 weeks of my life and I don’t wish this torture on my worst enemy.’
My Daughter Was Born Without Eyes, But She Is The One Teaching Me To See
“I saw her in my dreams with big brown eyes. ‘I think she may be blind.’ Not only was she completely blind, but she also didn’t have eyes! To actually not have eyes seemed impossible. We went home thinking that blindness would be Evely’s only struggle. Boy, were we wrong.”
‘I couldn’t sleep laying down anymore, I couldn’t laugh without gasping for air. I was dying. I was 22 and writing a will in case anything happened to me.’
“I was so busy moving forward I wasn’t even aware my mind was stuck. A few months afterward, the actual nightmares began. I would try to sleep and flashbacks and memories bombarded me. I cried every night for weeks. I knew I needed help.”
‘I wanted to find my biological parents. My mom told me ‘no.’ It was a closed adoption. Soon after, a mail order DNA test caught my eye.’: Woman ‘stuck between 2 worlds’ embarks on search for family names
“On top of being adopted and feeling different, I WAS different. With my dark hair, green eyes, and short stature, I stood out. I remember looking at pictures, my family laughing about how all their noses matched. I couldn’t participate in the conversation. I felt like an outsider. My husband and I decided it was time. I sent it off.”
‘We were about to see our baby. We were filled with so much hope. But our world was about to come crashing down. The lab tech was very quiet. I thought she was having a bad day.’
“The doctor said our daughter wouldn’t be able to feed or dress herself, she would be a ‘burden to society’ and would most likely ‘end up in an institution.’ I believed him. He pushed for termination and never once told us anything positive. We couldn’t be more proud of the little lady she is.”
‘I was a prisoner to thinness. I’ve gained 75 pounds. But something miraculous happened.’: Woman overcomes eating disorder after sexual trauma
“I was 6 when I wore my first bathing suit in a beauty competition. I was 8 when my dance instructor told my mom I was too chubby. I was 15 when I became addicted to diet pills. After seeing myself go through so much to bring my children into the world, I now know that worthiness is my birthright.”
‘I was prepared for surgery. Panic took over. I counted the tiles on the floor to keep from having a major panic attack. All I could think about were my two sweet babies at home. 3. 2. 1…and I was asleep.’
“It was a quiet dinner; not many words were exchanged. We just sat together and acknowledged what was coming. He held my hand and made sure I drank and ate whatever I wanted. When we were done, I went home to feelings of intense physical pain. I didn’t want to go to the ER. I just had to wait.”
‘I looked straight at my husband. ‘Why isn’t he crying?’ He was like a wet sponge. Within seconds, he coded blue.’: Mom births baby with centronuclear myopathy, ‘I will do everything in my power to give him a full, happy life’
“My husband gripped my hand firmly and hugged me. ‘Please take care of our boy. Do anything you need to make sure he’s going to be ok.’ I reached out to hold his little hand. He couldn’t even grip it. His eyes were unable to open. He couldn’t close his mouth. He just lay there. The geneticist told us, ‘These types of cases very rarely live to see their 6-month birthday.’ He then shook my hand and left. I was in literaly hell.”
‘It’s a bambino!’ I was like, ‘what??’ All I saw was all the HAIR she had! Then 5 seconds later, she was whisked way to the NICU.’: Parents shocked by daughter’s Cornelia De Lange Syndrome diagnosis
“When I first looked at her, I knew something was different. I asked my husband, ‘What did you think when you went to see her?’ He replied, ‘She’s just so perfect and beautiful.’ I couldn’t shake what was in the back of my mind.”
‘I went to my doctor to get an ultrasound of my abdomen. The results sent my world into a spiral. I was in complete shock. Was this the end for me?’
“We all have that inner voice that tells us when something is wrong. Something in your gut. Mine was saying this news wasn’t going to be good. The gynecologist came in, sat next to me on the bed, and said, ‘I’m sorry kiddo.'”