‘They lost touch. But he remained very dear to my dad, and years later, Dad asked if I could try to find him on the internet. I tried, but had no luck. Part of me was a bit relieved.’

“At the top of his planner was a name I didn’t recognize. I called. ‘Hello sir, my name is Sarah. I’m the daughter of Eugene. He has you here in his phone book but I’m not sure how you know him. Are you from his days in New Jersey?’ At that moment, my memory came back, and I could feel the surge of emotion in me.”

‘It looked like she was doing a stomach crunch. Both arms and legs came together in the air. This went on for hours.’: Mother thrilled to have her ‘happy baby back’ after Infantile Spasms diagnosis

“We first noticed a weird movement when she was 5 months. Doctors said, ‘It’s just gas. Change her to soy milk,’ and, ‘It’ll pass.’ It wasn’t until her dad decided to search ‘spasms,’ that we began to gain insight into this nightmare. Something in me snapped. She was using our daughter for her own research. ‘I’m so sorry baby,’ her dad always said. Through all this, Salma has never shown signs of giving up.”

‘Me: Kids, I’m going to go take a quick shower. Child: Can I have a snack? Me: No, I’m going to make dinner. Another child: Can you help me find my pink dragon with glittery wings?’

“Yet another child: Can I tell you about this new game that’s coming out that I really want for Christmas? Me: Yes, after my shower. Walks upstairs. Children follow. Child: How MANY pieces of candy can I have after dinner? Yet another child: So I can get that game for Christmas? Steps out of shower.”

‘This is me, hosting our very first Thanksgiving. I’m cooking in A SKIRT AND HEELS. I’m smiling, even though my marriage was falling apart.’: Woman overcomes family, relationship issues to make room for ‘gratitude’ in life

“So, you’d think I’d look at this picture, look at her all smiley and hiding and ignorant, and I’d be embarrassed. Or maybe sad for what she went through, or even angry, at my husband or my mom, or the world or God, but I don’t feel any of that.”

‘Whoa! He has some really blonde hair.’ I JUST KNEW. My husband smiled. ‘He’s an albino.’: Mother of 2 sons with albinism says the best thing she can instill in them is ‘confidence’

“The doctor was staring inside me with a flashlight. We realized there was something extra special with him when nurses were coming in to see the ‘baby with the white hair.’ It was so white it would sparkle in the sunlight. My mother in law stared in awe and said, ‘He’s like a special little fairy.’”

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