‘He went into a silent seizure. We heard ‘code blue’ over the loudspeakers. ‘If it’s his time, let him go.’ My mama heart just knew.’: Mom loses son to fatal Sanfilippo syndrome, ‘God entrusted me with the most beautiful human’

“We knew the symptoms would get worse. That one day, the smile that made my heart flutter would lose its spark. We were on ‘borrowed time.’ The parademics tried to resuscitate him. His heart stopped beating 3 times. Until his very last breath, Lucas made sure we had the time we all needed to know he was at peace.”

‘He let out a big sigh. ‘I feel funny asking, but does Autism last forever? Will he have it when we are old and in heaven?’: Mom to autistic son urges ‘have the emotional and honest conversations’

“I didn’t answer right away. I wanted to listen. He went on to say, ‘I remember when I was little mama and Cooper had it. I couldn’t figure him out. I used to think he was from a different planet because he screamed all the time.’ He sighed. ‘I just wish sometimes it would go away so we could talk.'”

‘My oldest son has said, ‘The school officer treats the black kids meaner. It gives me anxiety.’ I’d never tell you that at the ripe age of 14, my son ‘fits the description.’: Mom says ‘my mama heart breaks for reasons you’ll never fully grasp’

“I don’t tell you that even though we are careful not to watch these awful videos of unarmed people getting shot, your children are showing them at school. That my son has said the words ‘I can’t breathe’ when seeing a police car. I need you to love them like you love your own sons, because my mama heart cannot handle another man being shot that looks like my brothers, cousins, uncles, and sons.”

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