“When my boys got their first powerchairs, I felt immense joy as they sped around the cul-de-sac racing together, but I also felt like someone had punched me in the stomach. How did we get here so fast?”
- Love What Matters
- Health
- Special Needs
“When my boys got their first powerchairs, I felt immense joy as they sped around the cul-de-sac racing together, but I also felt like someone had punched me in the stomach. How did we get here so fast?”
“Life is a flowerbed of countless unique colors.”
“Don’t teach your children to hate or hide their diagnosis. There is NOTHING they aren’t capable of accomplishing.”
“When the world feels too big, too noisy, too chaotic – a hood provides a barrier. A safe space. A partition between the person and the rest of the world.”
“We call him ‘Hearo Harrison’ because he has his own superpower—his magic ears.”
“Every day I watch my boys fight one of the most challenging diseases in existence. Not only do they inspire the world around them, but they inspire us to live like them. We are more empathetic, kind, and loving people because of the path we’ve been forced to travel.”
“We were told we were wasting our time, energy, and money. They. Were. Wrong.”
“If I hide him away, and if every other parent of a disabled child hides their child away, when is there going to be an opportunity to educate? Where is the inclusion? Where is the awareness and the representation of children like mine?”
“The excitement and determination were swept away with grief. This incurable disease is marked by developmental delays, atrophy of the basal ganglia and cerebellum, difficulty controlling muscles… and death.”
“I know how to love different, how to embrace different, how to see all the different and know that it is beautiful. But most importantly, I know how to love a special little baby with my whole heart, and give him the life full of adventure he deserves.”