Receiving a rare disease diagnosis can be overwhelming and bewildering.
11 Tips For Navigating Rare Disease
‘I felt like an Olympic athlete who had just won the gold.’: Asthma warrior shares how she’s taken back her life
“I was gasping for air, while lying in the grass, but I was sharply aware of the difference in the way I felt… powerful and incredibly proud. It dawned on me at that moment: I am more than my asthma and I have more control than I realize.”
Panic Attack Disorder Is Not A Sign Of Weakness
“You have not magically become frail and defective. Silence those lies and take your power back.”
Proud Mom Gushes Over 11-Year-Old Conquering Anxiety Attacks To Play Football
“This kid is my freaking hero.”
‘I was benched and pushed to the side.’: Woman with Treacher Collins Syndrome shares overcoming adversity
“I was often cornered and assaulted during school. I would eat cold, bland school sandwiches soaked with my tears in the bathroom stall. Then the man I wrote about in my journals suddenly surfaced into my reality.”
‘I learned to hide myself behind drugs.’: Child abuse survivor shares addiction recovery journey
“Abuse at home, bullying at school, and the anguish of mental illness are the seeds from which addiction grows. So before you pass judgment on me, let me show you my roots.”
Mom Of 3 Can’t Contain Joy After Surprise Baby With Down Syndrome In Mid-Forties
“It’s a privilege to love someone with Down syndrome. But to be loved BY someone with Down syndrome, now that is just pure magic.”
‘I was a binge drinker with no off-switch.’: Mom shares road to recovery after years of ‘problems with alcohol’
“I’ve figured out who I am without alcohol. I feel like I’ve found the secret to my life.”
How To Identify & Cope With Strabismus (Crossed Eyes)
If you let it, strabismus can change your world for the better.
‘It’s impossible to explain how I was able to function.’: Chronic illness warrior’s difficult Ehlers Danlos Syndrome diagnosis
“I genuinely don’t know what it’s like to have a functioning gastrointestinal system or blood cells, or not have fluid pressing onto my brain.”