‘How can I be an advocate one day and a sobbing mess the next? The ups and downs were exhausting.’: Mom of boys with rare degenerative disease says ‘it’s OK to not be OK all the time’

“It’s only through the hard days that I get stronger. It’s only after those long, painful sobs that my tears turn to courage. It’s only after I wallow in the valley of sorrow that I’m able to find the strength to climb back up that mountain and choose joy again.”

I Am Beyond Grateful For My Kids, But I Am Still Breaking

“I have a beautiful home. A working car. Clothes. Shelter. Food. I AM grateful. I’m so blessed. But on the flip side, I’m a single mom of 3, one with special needs, that works 3 jobs to keep this life floating. I’m tired. I’m broken. I’m breaking. I want to run my phone over. I want to run away. I need a break.”

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