“You grew up without a roadmap to understanding how your brain is wired, and then you received a diagnosis society looks at as negative.”
- Love What Matters
- Health
- Disorder
“You grew up without a roadmap to understanding how your brain is wired, and then you received a diagnosis society looks at as negative.”
“It’s okay to feel lost, alone, angry, sad, and confused. And you’re NEVER alone.”
“We are constantly asking him ‘Are you okay?’ But in true Drew fashion, he’s all smiles, charming and polite. He amazes us to no end.”
“My mother was convinced I had the same condition she had called Endometriosis. She kept taking me back to the doctor and pushing for more investigations. Each time the doctor would dismiss us both, treating her as the overbearing mother and me as the attention-seeking teenage girl.”
“I noticed voicemails on my home phone. Everyone had our cell numbers, so I couldn’t imagine who could have called our house and left not one, but three messages. Surprisingly, it was my doctor. ‘Something doesn’t look right.’ She wanted me to call her back, but didn’t say any more than that.”
“They told us, ‘The tumor is growing all around and between the bones, resulting in the bones being separated.’ It would be impossible to remove all of the tumor and leave behind a functioning arm. The best treatment would be amputation and chemotherapy.”
“I was told if I was to do a heart transplant, it would only give me 20 years to live. I can’t have that for my son; I want to be able to spend time with him.”
“Those moments that may seem ordinary, or even exhausting to you now, will someday stand out in your mind as incredibly precious memories and not at all ordinary.”
“I’m not hungry all the time. I don’t dream about food anymore. I’m certainly not perfect, but I am happy.”
“Surrender is not about throwing in the towel or giving up the fight against this awful disease. I will advocate, care for, and fight alongside my boys until my last breath – but I refuse to let it steal my joy or my hope.”