“I thought my calendar would be busy with school events and sports practices, not therapies and Medicaid calls. I didn’t imagine motherhood resembling full-time nursing.”
I Expected Movie Nights In Motherhood, Not Pill Sorting
‘The OB said, ‘You have 2 days to decide if you’d like to continue your pregnancy.’ My mind couldn’t grasp life without my baby boy.’: Mom births son with Spina Bifida, ‘He has beaten so many odds’
“From the day we found out about his diagnosis, we knew we had a fighter on our hands.”
‘She didn’t hesitate. Only 4 years old, she said, ‘Yes, I want to help him.’: Mom shares son’s MPS1 journey, sister’s bone marrow donation
“When they brought Olivia’s bone marrow into the room, there was a very intense presence knowing we were about to witness our daughter’s cells and our son’s become one right in front of our eyes.”
‘He beamed with pride ‘I cannot believe the mayor wants me to speak in front of the city council!’: Teen boy with autism advocates for city council to be more eco-friendly
“Many things do not come naturally for Sebastian, but it appeared as if public speaking was something he had done all of his life.”
‘I need you to go to the Children’s Hospital right now, Asher has a 578 blood sugar level.’: Mom’s advocacy for son leads to Type 1 Diabetes diagnosis
“When they told us, ‘Most kids that have Type 1 diabetes but don’t know come in unconscious or super sick,’ Asher and I knew we had to start sharing the symptoms. This could happen to anyone of any age.”
To My Son With Autism: I Wish The World Saw The Real You
“Not stereotypes of who you should be. Not how they portray autism on TV. Not a generic definition from the internet. The you that I see.”
‘The doctor arrived at my bedside right as Lily started to turn blue.’: Parents share baby’s journey with Sturge-Weber Syndrome
“The medical team would crowd around her and all we could do was stand back and watch the numbers on the monitor get smaller and smaller.”
‘I pushed the post button. ‘Oh my god. People now know I’m balding.’: Woman with alopecia shares hair loss acceptance journey
“Not everyone is ready to talk about it or go public. No one knows what’s best for you, except YOU.”
I Was Diagnosed With ADHD At 33, And It Changed My Life
“Left is me off medication. Right is me on medication.”
‘Your baby has a birth defect.’ The beautiful boy with the pouty little lips, gorgeous blue eyes, and full head of hair? It had to be a mistake.’: Mom shares acceptance of baby’s Hirschsprung Disease
“My son had a birth defect, and the reality of it cut through me like a knife.”