“There are no words to describe what it feels like to watch your children weaken over time. Depression and anxiety visit me daily. Some days, I punch my pillow and beg for different circumstances.”
‘Today, I threw myself a little pity party. There were no decorations or balloons, just coffee and lots of tears.’: Mom of boys with rare genetic disease shares how she keeps fighting
‘If your son was less disabled, we could be of service to him.’: Mom shares ‘horrendous email’ received when seeking support for son with autism
“The current state of the world is becoming the new excuse as to why families like mine don’t get the help we need.”
‘You can’t have these symptoms because they do not match your appearance. You must imagine them.’: Woman with Ehlers-Danlos syndrome shares journey to diagnosis, reclaiming her life
“I was in endless survival mode, in bed for months, and none of my doctors believed me. Every well-crafted piece that compiled my life broke apart. I realized that no matter how hard I tried, there was no way back into my old life. I needed to find a new purpose, a new definition of who I was and what I wanted in life. And that’s when something shifted inside me.”
‘I have babies to deliver. Yours is dying, so make it quick.’ She reached in, ripped her out.’: Mom opens up about horrifying medical malpractice causing severe disability, repeat stillbirths
“Had the nurse just called an emergency, had the doctor just put aside that she didn’t like our parental choices… we wouldn’t have to live with this unbearable pain.”
Bride Surprises Groom By Signing Wedding Vows For Deaf In-Laws
“I want our family to be able to communicate without any barriers.”
‘My faith is solid, but it’s something I fight hard for.’: Mom shares how she remains faithful during ‘life’s roughest storms’
“Sometimes I don’t feel like praying. Some days I don’t feel like reading my Bible. Some days I don’t even want to get out of bed. Suffering tries to steal my faith daily.”
‘There’s nothing we can play with.’ They solemnly looked around the backyard.’: Mom of boys with Duchenne Muscular Dystrophy shares how their resiliency turned ‘pity to praise’
“My boys just stood there watching. It was like they suddenly realized how much their lives had changed in recent years. They used to be able to climb and go down the slide. They used to be able to keep up with their little sister… but not anymore.”
‘Our communication device broke today. His voice was whipped away in an instant.’: Mom to son with autism shares reminder ‘we all take speech for granted every day’
“I could see the panic set in, and it was awful.”
Deaf Boy Hugs Mickey And Minnie Mouse For Using Sign Language
The most magical place on earth just got even more magical.
‘Something’s wrong with Shaina!’ She lay stiff, her face crimson, lips bluish. When we received an answer, it was devastating.’: Girl with BPAN, a rare disease, inspires kindness movement
“Her diagnosis sent us reeling, but we decided we wouldn’t define Shaina by her condition but by her sunshine personality.”