“It can occur with a few drinks before a woman knows she is pregnant.”
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“It can occur with a few drinks before a woman knows she is pregnant.”
Receiving a rare disease diagnosis can be overwhelming and bewildering.
“I was gasping for air, while lying in the grass, but I was sharply aware of the difference in the way I felt… powerful and incredibly proud. It dawned on me at that moment: I am more than my asthma and I have more control than I realize.”
“I genuinely don’t know what it’s like to have a functioning gastrointestinal system or blood cells, or not have fluid pressing onto my brain.”
“The leading cause of death in Lyme patients is suicide. If that doesn’t tell you how horrible it is, I don’t know what will. So many of us lose everything because of this disease, and believe it or not, many doctors still don’t believe it even exists.”
“My symptoms are not determined by my mind. However, my perspective is framed by my mind, and with this I’m able to experience the same pains in different ways.”
“Living with epilepsy isn’t easy but we have an option: we can make it easier on ourselves or harder. Look for the silver linings in the storm.”
“I was so sick of having epilepsy run my life, that within .5 seconds of my epileptologist asking me if I was up for brain surgery, I didn’t even blink and told him, ‘YES!!!’”
“Even if you feel hopeless, there is hope. Don’t give up on finding a medical professional who will listen to you and advocate for you.”
“My joints are wonky, my nerves are broken, and my heart beats like I’m running a marathon when I stand up from the couch, but I now have the words to explain the experiences I’ve been having.”