‘I don’t really know what to say. Would you like tea?’ I’d just found out my boy wasn’t fine, he’d never be fine, and our life was forever changed.’: Mom’s son diagnosed with rare Vanishing White Matter terminal illness

“He wasn’t able to walk or stand. He was dragging one of his legs and crisscrossing them. Friends and family kept trying to reassure me everything would be okay, but I knew it wouldn’t. I could tell by how the doctors tiptoed around us, the way they were spending so much time with us. ‘It’s progressive, untreatable, incurable, and terminal.’ Despite all this, Sam is joy personified. He is the most incredible person I’ve ever met.”

‘My DAD was in the delivery room when I birthed my first child. ‘It’s okay Molz, you got this!’: Daughter grateful to experience ‘remarkable moment’ with father after losing him 3 years later

“I looked up from the bed horrified my dad was actually watching this whole thing. He could have snuck out. But he chose to stay. And I chose to let him. The power of those decisions would not be fully understood until years later. My dad died when the baby girl he witnessed come into this world was just 3 and a half years old.”

 Share  Tweet