‘We were about to see our baby. We were filled with so much hope. But our world was about to come crashing down. The lab tech was very quiet. I thought she was having a bad day.’

“The doctor said our daughter wouldn’t be able to feed or dress herself, she would be a ‘burden to society’ and would most likely ‘end up in an institution.’ I believed him. He pushed for termination and never once told us anything positive. We couldn’t be more proud of the little lady she is.”

‘I was prepared for surgery. Panic took over. I counted the tiles on the floor to keep from having a major panic attack. All I could think about were my two sweet babies at home. 3. 2. 1…and I was asleep.’

“It was a quiet dinner; not many words were exchanged. We just sat together and acknowledged what was coming. He held my hand and made sure I drank and ate whatever I wanted. When we were done, I went home to feelings of intense physical pain. I didn’t want to go to the ER. I just had to wait.”

‘I looked straight at my husband. ‘Why isn’t he crying?’ He was like a wet sponge. Within seconds, he coded blue.’: Mom births baby with centronuclear myopathy, ‘I will do everything in my power to give him a full, happy life’

“My husband gripped my hand firmly and hugged me. ‘Please take care of our boy. Do anything you need to make sure he’s going to be ok.’ I reached out to hold his little hand. He couldn’t even grip it. His eyes were unable to open. He couldn’t close his mouth. He just lay there. The geneticist told us, ‘These types of cases very rarely live to see their 6-month birthday.’ He then shook my hand and left. I was in literaly hell.”

‘He locked me in the basement for days. I had asked him to help with baths for our kids. Then he took his own life.’: Woman reclaims self-worth after husbands’ suicide

“I kept wondering how I would get out. He must have decided the kids were too much to handle on his own. I sat in ICU while he was declared brain dead and thought about everything that happened. I felt sadness, anger, shock. The biggest emotion I felt was relief. I no longer had to fight to be respected. I felt free.”

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