Emily Richey

Emily Richey is a graduate of Pace University NYC. She has written and edited for multiple online platforms, including Love What Matters. She spends her free time petting stray cats.

‘Within 24 hours of birth the doctor said, ‘He needs immediate surgery.’ Other moms got to have normal kids.’: Mom of son with Lowe Syndrome finds her tribe, ‘They take care of us’

“I knew parenthood would be full of stress, but not like this. Hayden’s conditions were so rare, he didn’t fit into any box we could find. We couldn’t even find the questions to ask. I watched as all the other new moms got to have normal kids without a care in the world.”

‘We felt helpless watching his silent cries. ‘Am I allowed to touch him?’ We already lost our baby girl.’: Mom births rainbow baby with Congenital Diaphragmatic hernia, ‘I chose faith over fear’

“She told me our baby boy had a hole in his diaphragm. We felt helpless as our sweet boy fought for his life, and there was nothing we could do. After we lost our daughter, I said I would have done absolutely anything for her to be with us. This is it. This is the ‘absolutely anything.’”

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