Amanda Doulos is a digital editor for Love What Matters based in New York City. She will graduate from Binghamton University with a Bachelor of English Literature and Spanish in Spring 2023. She loves staying involved as vice president of the mock trial team and secretary of Spanish Honor Society. In her free time, she loves reading, traveling, and spending time with friends.
‘You’re just having growing pains.’ I’d dislocate my knee twice a week. My joints felt like they were being ripped apart.’: Woman diagnosed with Ehlers-Danlos Syndrome after 17 years
“My doctor looked me in the eyes, ’You’re not crazy. The pain you feel is real.’ It took everything in me not to cry. For the first time in 17 years, a doctor finally believed me.”
‘In my left hand, I held a gun. In the other was a beer. My first Christmas as a single mom without my kids was soul-wrenching.’: Woman shares grief journey, ‘Life is messy and beautiful’
“I walked up to the cashier with a plunger and a six-pack of beer. ‘Merry Christmas!’ she beamed. I’m not sure I even said anything, but it wouldn’t take a rocket scientist to see I wasn’t feeling the spirit. This wasn’t how I intended to spend Christmas Day.”
‘You need to tie your hair up.’ I ran home in tears. My hair was my shield. Without it, I felt lost and defenseless.’: Woman with hearing loss becomes advocate, ‘I no longer want to hide’
“I deliberately chose brown hearing aids to match my hair. ‘I want them to be invisible to everyone.’ I made sure my hair was always covering my ears. This became the perfect disguise.”
‘I have to report you to CPS.’ I was hysterical. All I could think of were police coming to rip my son away. I knew I needed help.’: Single mom shares sobriety journey, ‘You’re not your past’
“Both my grandparents died within 9 months. I showed up to both funerals buzzed. I felt so abandoned by everyone that alcohol became my best friend. It was there for me when I was sad, anxious, even happy. Alcohol was the answer to my problems.”
‘Something’s different.’ I felt the vibrations on my skin, but I didn’t hear anything. My heart dropped.’: Mom shares hearing loss journey, ‘The sky’s the limit’
“Would I ever hear my boyfriend say the words ‘I love you’ to me again? How was I going to have a career? ‘Perhaps you’d make a good audiologist.’ I wanted to help others.”
‘I don’t belong here.’ I had a hard time accepting myself. People were always trying to ‘fix’ me.’: Woman finds acceptance in Deaf community, ‘We have so much to offer’
“I was never invited to a friend’s house. At lunchtime, I couldn’t keep up. I was slapped because I pronounced words wrong. No one else shared my struggle. I found my community and never looked back.”
‘I want to be a part of the race.’ I’d go full throttle on the joystick. I felt free from the burdens of my disease.’: Man details journey with Duchene Muscular Dystrophy, ‘I’ll always be strong’
“It was an adrenaline rush. In those brief seconds, the freedom was priceless. The thin line of scar down most of my back is a reminder of how I’ll always stay strong.”
‘Something’s off. I’m married to someone I love. I have a good job. I’m healthy. Things are good.’ Until they WEREN’T.’: Woman shares divorce, mental health journey, ‘Only YOU have control over your destiny’
“I woke up to the news my grandfather had passed away. And 3 hours later, I was signing my divorce papers. I decided I was done. I was done feeling sorry for myself.”
‘My doctors said, ‘This is enough.’ I knew they were right. My body was giving up on me. I was a prisoner of my own mind.’: Woman shares anorexia recovery journey, ‘I’m fighting for my future’
“My weight dropped dangerously low. Everything ached: my skin, my bones, my muscles. I destroyed myself. I’d never felt so weak, isolated, and depressed. I decided it was enough.”
‘I can’t breathe.’ My vision faded. Life wasn’t worth living. I was too expensive to be kept alive.’: Woman battles Pulmonary Arterial Hypertension, ‘I’m on the road to acceptance’
“I left the ER with no answers. I began to give voice to the intense pain I experienced daily. ‘Something is very wrong with you!’ I smiled. Finally, someone believed me.”