Amanda Doulos is a digital editor for Love What Matters based in New York City. She will graduate from Binghamton University with a Bachelor of English Literature and Spanish in Spring 2023. She loves staying involved as vice president of the mock trial team and secretary of Spanish Honor Society. In her free time, she loves reading, traveling, and spending time with friends.
‘I feel like a prisoner in my own body.’ I let the anxiety take over my life. I just KNEW it would end up killing me.’: Mom battles POTS and anxiety, ‘I’m not giving up anytime soon’
“I convinced myself I was dying. I worked myself into a panic attack. ’Why is this happening to me?’ It was brutal. I didn’t know how I was going to make it, but I knew I had to do it for my baby.”
‘There’s nothing else we can do.’ I lost my hair in handfuls at a time. It was hard to look in the mirror. I didn’t see the point in living.’: Chronic illness warrior says ‘I’ll never take life for granted’
“I started to see bald patches on the back of my head. My legs and arms would ache so badly I felt like I would vomit. I lay on the couch, wondering why my body hated me so much. Every day, I woke up with one more symptom, one more medical bill.”
‘Wow, your sister looks so much like your parents!’ Until that moment, it had never occurred to me that I was different. I was bitter and angry.’: Adoptee raises awareness, ‘You’re not alone’
“Growing up, my birth story wasn’t like the ones my friends had. I never knew where I was born or what my biological family looks like. ‘Why do I have black hair and black eyes while you’re blonde? I felt displaced.”
‘You’re too complicated.’ I was the girl who was always on crutches or in a cast. My doctors were stumped.’: Woman diagnosed with Ehlers-Danlos Syndrome, ‘My story isn’t over’
“I was bullied by my classmates. ’You’re just faking.’ I had pneumonia, broke my wrist twice, tore my MCL, sprained my ankle again, and had my appendix taken out—all in 3 years. I just wanted to be normal.”
‘You just picked up a virus.’ I was dizzy every second of the day and felt excruciating pain. Why wasn’t this going away?’: Woman advocates for Chronic Lyme Disease, ‘We’re in this together’
“I felt a pit in my stomach. Then the pain started, a sharp pain right above my belly button that wouldn’t go away. I was collapsing every time I got out of bed. I’d drink a ton of water, eat enough, and was still feeling ill.”
‘When people asked me for gift ideas, I’d smile and say, ‘Just wine and diapers!’ How else could I unwind? It never stopped at just one glass.’: Mom shares sobriety journey, ‘I’m a better mom’
“I entered the life-changing, magical world of motherhood. I had no clue what I was doing. Breastfeeding vs. formula feeding. Crib vs. co-sleeping. It felt like there was nothing we moms could ever agree on. Well, except for one thing… wine.”
‘Don’t go home, don’t stop for lunch. Go to the ER now.’ This joyous event was clouded over. We had no idea what to expect.’: Mom diagnosed with kidney disease, ‘My child saved my life’
“I felt very drained. I kept running to the bathroom every 5 minutes. My shoes wouldn’t fit, and my face was starting to look and feel puffy. Our precious child was now going to help Mommy fight for her life.”
‘Starting tomorrow, I won’t use drugs.’ It was only a matter of hours before the loneliness crept in. I didn’t care if it killed me.’: Mom describes sobriety journey, ‘God met me right where I was’
“I found myself with two kids, multiple divorces, and a life in utter chaos. I still couldn’t see the problem was me. I’d promise I’d be back and never show up. My kids spent 3 years never knowing if I was coming home.”
‘It’s all in your head.’ I was urinating 30 times a day. It was hard to bear. I was left with a tube hanging between my legs.’: Woman diagnosed with Interstitial Cystitis, ‘It’s given me confidence’
“I felt as if I had a UTI, but the dipsticks came back fine. I spent so much time in the toilet it became a work joke. I’d wake up five times a night for the toilet and at times, would hardly empty my bladder at all. I just felt clueless.”
‘There’s nothing we can do.’ I felt my hopes and dreams slip away. My life was falling apart and nobody could tell me why.’: Woman diagnosed with Ehlers-Danlos Syndrome, ‘I’ll never stop fighting’
“My body’s injustice and betrayal would send me fleeing to a quiet place where I wouldn’t be discovered by my kids. I’d hide in my closet, trying my hardest to muffle my crying. As the tears fell from my cheeks and were washed away, I’d wish they were carrying the sickness out of me.”