Amanda Doulos

Amanda Doulos is a digital editor for Love What Matters based in New York City. She will graduate from Binghamton University with a Bachelor of English Literature and Spanish in Spring 2023. She loves staying involved as vice president of the mock trial team and secretary of Spanish Honor Society. In her free time, she loves reading, traveling, and spending time with friends.

‘There’s nothing else we can do.’ I lost my hair in handfuls at a time. It was hard to look in the mirror. I didn’t see the point in living.’: Chronic illness warrior says ‘I’ll never take life for granted’

“I started to see bald patches on the back of my head. My legs and arms would ache so badly I felt like I would vomit. I lay on the couch, wondering why my body hated me so much. Every day, I woke up with one more symptom, one more medical bill.”

‘There’s nothing we can do.’ I felt my hopes and dreams slip away. My life was falling apart and nobody could tell me why.’: Woman diagnosed with Ehlers-Danlos Syndrome, ‘I’ll never stop fighting’

“My body’s injustice and betrayal would send me fleeing to a quiet place where I wouldn’t be discovered by my kids. I’d hide in my closet, trying my hardest to muffle my crying. As the tears fell from my cheeks and were washed away, I’d wish they were carrying the sickness out of me.”

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