Amanda Doulos is a digital editor for Love What Matters based in New York City. She will graduate from Binghamton University with a Bachelor of English Literature and Spanish in Spring 2023. She loves staying involved as vice president of the mock trial team and secretary of Spanish Honor Society. In her free time, she loves reading, traveling, and spending time with friends.
‘It’s just growing pains, don’t worry about it!’ I couldn’t even walk. I was terrified. I HAD to speak up for myself.’: Young chronic illness warrior details road to diagnosis, ‘I took on this journey with a smile’
“My cardiologist told me, ‘It’s all in your head.’ She was mad I couldn’t even stand for an assessment. I tried to push through. How could she say what I was going through wasn’t real?”
‘My life was out of control. I drank as much as possible to escape. ‘Why is this happening to me?’ I only had half of my hair left, but I couldn’t give up.’: Woman with alopecia takes back her life, ‘I made myself a priority’
“I covered all of the mirrors in my apartment and closed all of the blinds. I didn’t want to see my family or friends. I didn’t want anyone to be near me. I was so ashamed and disgusted with myself. My hair was my security blanket, but it was almost gone.”
‘Worst case, you’ll end up in respiratory failure.’ I was admitted to the hospital. Little did I know, 17 months later, I’d still be there.’: Woman diagnosed with rare autoimmune disorder, ‘I’m lucky to be alive’
“It was the most terrifying thing I’ve ever been through in my life. I could barely breathe. ’I think you have myasthenia gravis.’ It’s like being trapped in your body. No one knew if I would make it.”
‘I heard my phone ding and felt my breath catch. ‘A little boy was born last night. He’s in critical condition.’ Without a second thought, we said, ‘YES!’: Couple shares beautiful open adoption
“I was sure we would have heard by now. Not a minute after I let myself lose hope, my phone rang. A little boy had been born the night before. His birth had been traumatic. ‘Is there any reason we’d say no?’ We were sure he was meant to be our little boy.”
‘You’re the only one I ever felt was on my side.’ We found a broken system. Even if it changes just one life, it’s worth it.’: Foster mom shares ‘roller coaster’ journey, ‘We rise to the challenge’
“I’ll never forget the day CPS called and said, ‘The mother is accusing your family of neglect.’ I immediately felt sick to my stomach. Seeing the children reach milestones, despite the odds, makes all the background noise disappear.”
‘It’s the most natural thing in the world!’ I felt like less of a woman. Every time he fed, it felt like I was being stabbed. It was UNBEARABLE.’: New mom shares breastfeeding struggles, ‘I’m proud of my body’
“They had no idea how much pain I was in, or how little milk he was actually managing to take each time. I honestly believed we were watching our baby starve and no one was listening to us. We both knew it was me or nothing.”
‘Who’s that boy?’ I wore boys’ clothes and refused makeup. My body didn’t match what was in my head.’: Transgender man shares journey, ‘Coming out can be scary but freeing’
“I was always told I behaved like a boy, but that bounced off me. I didn’t know why I didn’t think, feel, or look like others. I came out as a lesbian and cut my hair short. Something was still missing.”
‘Becoming a mom has been the biggest obstacle of my life. ‘We’ll be the best parents if only someone will give us a chance.’ I wasn’t done with my dream.’: Couple battling infertility pursue adoption
“We felt like failures. ‘Why can’t I get pregnant? Am I being punished?’ Our hearts broke with each ’no.’ We kept pushing forward, knowing our perfect match was out there.”
‘I can’t live like this.’ My ovaries were the size of softballs, leaking fluid into my abdomen. My family needed me. I had to fight.’: POTS warrior shares motherhood journey, ‘You’re NOT alone’
“My husband was giving me my nightly shot, and I experienced a weird taste in my mouth. I felt like I was choking. ‘You have to keep taking it or risk losing the baby.’ Every day was a battle.”
‘It’s obviously psychological.’ Doctors dismissed my pain. I lost over 20% of my bodyweight in 8 months. I felt like a zombie.’: Chronic illness warrior finds hope, ‘I’m still fighting for answers’
“I was terrified of what my future would look like. I vomit in my mouth at least three times a day, and I can’t drink water. My migraine never went away. It’s been over 80 days without relief. The answers are out there.”